ms Archives

Raise Money for Your Illness with Something You Already Do Everyday!

A few years ago I read that hayfever got more federal funding than ME/CFS. I was pissed devastating “invisible” illnesses get so little funding. The Jersey girl in me came out & I went on this quest to figure out how to raise money. I scoured the internet for weeks, reading every idea I could find: [...] Continue reading →

Traveling While Sick: Pooped, Tired & Autoimmuned

Flying With Chronic Illness: Snake On A Plane “Want a free trip to Hawaii? We leave in an hour!” Before getting sick you may have had your bags packed & been ready to go in 60 minutes flat (& that included getting the dog sitter!) Now it could take an hour to simply write down all the [...] Continue reading →

S.O.S. Save Our Spoons 2

If you could save even a few spoons a day & get more done, would it be worth reading yet another blog? If you said yes (& hopefully not: “YES!” since that would waste a spoon!) here are a few more ideas to hopefully make all your spoon banks a little richer! CALL ME MAYBE: [...] Continue reading →

Spoonie Chic: Look Good Using 3 Spoons or Less

I only caught a glimpse of her; her pale complexion, messy hair & mismatched clothes surely pointed to her being homeless. That was the thought I had, as I caught myself in the mirror! When you rarely leave the house, it can feel like a total waste of spoons (energy) to try to look good. It’s easy [...] Continue reading →

Pain in the Everywhere

Pain changes you You can go from a sweet, smiling person one minute to the PO’d Hulk the next. It’s not just Fibromyalgia or Rheumatoid Arthritis that can come with severe pain; many people don’t know MECFS, Lyme disease, MS, Lupus and many other illnesses can too. How severe the pain is can vary in [...] Continue reading →

S.O.S. – Save Our Spoons

Spoons: they used to just be a utensil I used to shovel my mom’s delicious soup into my mouth. Now they’ve become a system for measuring energy while sick! If you’ve been sick with an Auto or Neuro Immune illness for awhile you may have read The Spoon Theory. While at a diner with a healthy [...] Continue reading →

10 Ways to Survive a Doctors Appointment – Part 1

You would have thought I was Lindsey Lohan headed to prison. I hadn’t slept at all the night before, my heart pounded so loudly I could hear it in my ears, my leg shook frantically against the car seat despite barely having the energy to move and my mind raced from one bad thought to [...] Continue reading →